or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)





[12/15/18 - 08:39 AM]
Friday's Broadcast Ratings: FOX Continues Demo Win Streak
The network has won the night among adults 18-49 for 12 straight weeks.

[12/14/18 - 11:23 PM]
Development Update: Friday, December 14
Updates include: Netflix renews "My Next Guest Needs No Introduction with David Letterman"; NBC developing small screen take on podcast "The Black Tapes"; and DHX Media to bring the Peanuts characters to Apple.

[12/14/18 - 02:23 PM]
Bravo Media's "Married to Medicine" Season 6 Three-Part Reunion Hits a Fever Pitch on Friday, December 21 at 9PM ET/PT
The subsequent installments will air Sunday, January 6 and 13 at 9:00/8:00c.

[12/14/18 - 01:42 PM]
Superstar Recording Artists Jennifer Hudson, Kelly Clarkson, John Legend, Dierks Bentley, Halsey, Marshmello and Bastille, Panic! At the Disco, Brynn Cartelli and More to Perform on "Voice" Finale
The season finale will also feature special musical collaborations with the Top 4 finalists, which will be announced soon.

[12/14/18 - 12:01 PM]
Netflix Picks Up "Bonding" from Rightor Doyle
The dark comedy centers on the relationship between former high-school BFFs, Pete, a recently out gay man, and Tiff, a grad student and secretly one of New York City's top dominatrixes, who reconnect in an unexpected way years later.

[12/14/18 - 10:03 AM]
HBO Films' "Brexit," Starring Benedict Cumberbatch, Debuts Jan. 19
This provocative feature-length drama goes behind the scenes, revealing the personalities, strategies and feuds of the Leave and Remain campaigns.

[12/14/18 - 10:00 AM]
ABC Television Network Orders Additional Episodes of Comedies "black-ish," "The Goldbergs," "The Kids Are Alright" and "Single Parents" for the 2018-2019 Season
"Black-ish" has received two additional episodes while the others have been extended by one episode.

[12/14/18 - 09:06 AM]
Video: Showtime(R) Releases Official Poster and New Teaser for "Black Monday"
The 10-episode series will premiere on Sunday, January 20 at 10:00/9:00c.

[12/14/18 - 09:05 AM]
"Strike Back" Begins Season Six Jan. 25 on Cinemax
The show follows the explosive escapades of Section 20, an elite, multinational, covert special ops team, as it spans the globe fighting a vast web of interconnected criminal and terrorist activity.

[12/14/18 - 08:23 AM]
Thursday's Broadcast Ratings: "Thursday Night Football" Powers FOX Victory
The network's last Thursday game of the season delivers top honors in total viewers and adults 18-49.

[12/14/18 - 08:03 AM]
Video: "Russian Doll" Season 1 - Date Announcement - Netflix
From Natasha Lyonne, Amy Poehler and Leslye Headland comes "Russian Doll," February 1 on Netflix.

[12/14/18 - 08:01 AM]
DC Universe: The Ultimate Holiday Binge-Watching Destination Anchored with the Season Finale of Original Series "Titans" on December 21
97% of members have watched the exclusive original "Titans."

[12/13/18 - 11:22 PM]
Development Update: Thursday, December 13
Updates include: CBS revealed to have settled sexual harassment case with Eliza Dushku; Logan Lerman in talks to lead Amazon's "The Hunt"; and Jennifer Garner, J.J. Abrams to re-team for Apple's "My Glory Was I Had Such Friends."

[12/13/18 - 03:14 PM]
Red Nose Day Returns to NBC for Fifth Year with a Special Night of Programming on Thursday May 23, 2019
In 2019, the multi-week fundraising campaign will culminate on Red Nose Day, Thursday, May 23 with a three-hour block of Red Nose Day-themed programming on NBC.

[12/13/18 - 03:02 PM]
"Black Lightning": First Look at "Lightning"!
The network teases China Anne McClain as her crime fighting alter-ego in advance of the show's January 21 return.