or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)









[04/17/14 - 03:04 PM]
Season Two of "Paternity Court with Lauren Lake" Begins Production in Atlanta This Summer
Presiding judge Lauren Lake will once again take her place on the bench, helping families come together to sort out complicated relationships and find resolution in their lives.

[04/17/14 - 02:31 PM]
Wednesday's Cable Ratings & Broadcast Finals: "Survivor," "American Idol" Top Charts
Plus: numbers for FS1's "The Ultimate Fighter," Comedy Central's "Workaholics" and the NHL playoffs on CNBC and NBCSN.

[04/17/14 - 02:22 PM]
Exclusive World Premiere of Hour-Long Special "SuperSong" Starring Ricky Martin Launches on Crackle April 21
"SuperSong" takes viewers behind-the-scenes with global superstar Ricky Martin and music producer Salaam Remi as they record SuperSong contest winner Elijah King's winning track.

[04/17/14 - 01:48 PM]
"Arnie" Becomes Most-Watched Original Production in Golf Channel History
Golf Channel spins the numbers for Sunday, April 13 through Tuesday, April 15.

[04/17/14 - 01:30 PM]
TBS Hit Series "Sullivan & Son" to Welcome Back Guest Stars Kunal Nayyar, Ken Jeong and Billy Gardell
The series is set to launch its third season with back-to-back episodes Tuesday, June 24 at 10:00/9:00c.

[04/17/14 - 01:04 PM]
Amazon Fire TV's Voice Search Gets New Partners
Hulu Plus, Crackle, and SHOWTIME ANYTIME are joining VEVO in integrating their full catalogs into Fire TV's unified voice search.

[04/17/14 - 12:04 PM]
The CW Announces Summer 2014 Premiere Dates
Highlights include the return of "Beauty and the Beast" and the premieres of "Backpackers" and "Seed."

[04/17/14 - 12:00 PM]
IDW Entertainment, George Lopez, & David M. Stern Developing "Wormwood" as an Animated Series
David M. Stern has been tapped to write the pilot episode and serve as an executive producer on the series.

[04/17/14 - 11:56 AM]
David Letterman, Jerry Seinfeld, Jon Stewart, Tracy Morgan, Martin Scorsese and Robert De Niro to Headline Spike TV's "One Night Only: An All-Star Comedy Tribute to Don Rickles"
The 90-minute special, produced in conjunction with Don Mischer Productions, airs on Spike TV on Wednesday, May 28 at 9:00/8:00c.

[04/17/14 - 11:24 AM]
A&E Network Greenlights New Nonfiction Series "D.O.A." (Working Title) from Executive Producer Dick Wolf
The series follows a top team of detectives who will re-examine controversial murder cases in which unresolved questions still linger long after the verdict was determined.

[04/17/14 - 11:18 AM]
"The Tonight Show" Retains 100% of the Prior Week's 18-49 Rating, Sees Growth in Total Viewers
NBC spins the late-night numbers for the week of April 7-13.

[04/17/14 - 10:30 AM]
Video: First Look Clips at New Seasons of "Maron" & "Comedy Bang! Bang!" - Premieres May 8 on IFC
Today IFC released first look clips from both show's premiere episodes.

[04/17/14 - 10:30 AM]
E!'s "Chelsea Lately" Welcomes Khloe Kardashian, TJ Miller, Loni Love and Mary McCormack as Celebrity Guest Hosts April 21-24
Scheduled guests include Bob Saget, Wiz Khalifa, Mekhi Phifer and Ian Somerhalder.

[04/17/14 - 10:28 AM]
Two-Hour "Lindsay" Finale to Air Sunday, April 20 at 9 P.M. ET/PT on OWN
The OWN docu-series "Lindsay" follows movie star and media sensation Lindsay Lohan on her journey through recovery following a very public period of crisis.

[04/17/14 - 10:01 AM]
Academy Announces Key Dates for the Oscars(R)
The Oscars will be held at the Dolby Theatre(R) at Hollywood & Highland Center(R) in Hollywood, and will be televised live by the ABC Television Network.