[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.

  [february 2009]  


[10/26/16 - 03:23 PM]
Lifetime Partners with "The View" for Primetime Event Program, "The View Live Election Special"
The special will feature "The View's" co-hosts from their set with a live studio audience, election-themed Hot Topics, interactive election activities and up-to-the-minute results from key battleground states.

[10/26/16 - 02:01 PM]
Freeform Says Farewell to "Pretty Little Liars" with an Exclusive One-Hour Tell-All Following the Series Finale
Troian Bellisario, Ashley Benson, Lucy Hale, Shay Mitchell and Sasha Pieterse, as well as executive producer I. Marlene King, will sit down for an hour long unbarred and uncensored tell-all after show.

[10/26/16 - 01:31 PM]
Video: Showtime(R) Releases Poster and New "Presidential" Teaser for Stephen Colbert's Live Election Night Special
On election night, Colbert will be reacting in real-time to the election results as the state by state returns come in, making it the perfect election night destination for people who want to see all the latest news, without actually having to watch the news.

[10/26/16 - 12:45 PM]
New Comedy "The Mick," Starring Kaitlin Olson, to Premiere Sunday, January 1, After NFL Doubleheader, on FOX
The series will then regularly air Tuesday nights following "New Girl."

[10/26/16 - 11:42 AM]
Samantha Bee Interviews Her First Male President, Barack Obama
Said installment of "Full Frontal with Samantha Bee" airs Monday, October 31 at 10:30/9:30c on TBS.

[10/26/16 - 11:00 AM]
Starz Adds Michael Nyqvist, Nazanin Boniadi, Nicholas Pinnock and Sara Serraiocco to Spy Thriller "Counterpart"
The espionage thriller with a metaphysical twist also stars Oscar(R) winner J.K. Simmons, Olivia Williams and Harry Lloyd.

[10/26/16 - 10:32 AM]
Weinstein Television's Epic Scripted Event Series "Waco," Lands on Spike TV
Previously announced in August, the six-part event series is based on the harrowing true story of the 1993 FBI siege of a religious sect in Waco, Texas that resulted in the deadly shoot out and fire.

[10/26/16 - 10:32 AM]
"Broad City" Original Series Soundtrack Available Friday, October 28 via Milan Records in Association with Comedy Central Records
The album artwork and packaging is designed by artist Mike Perry, who is also the creator of the animated show opener for "Broad City," and features an insert with spliff-rolling instructions.

[10/26/16 - 10:23 AM]
The CW Gets Into the Spirit with Its Schedule of Upcoming Holiday Specials
New this holiday season, The CW will broadcast an original holiday special, "Terry Crews Saves Christmas," for five hour-long episodes across four consecutive nights, starting Tuesday, December 20.

[10/26/16 - 10:09 AM]
WGN America's Hit Supernatural Thriller "Salem" Returns Halloween Week Wednesday, November 2 at 9:00 PM ET/PT
In advance of the premiere, the network released a riveting new trailer featuring a gruesome twist on "Cats Cradle."

[10/26/16 - 09:26 AM]
Tuesday's Broadcast Ratings: World Series Opens on Top for FOX
The network's coverage is up more than 17% among adults 18-49 from last year.

[10/26/16 - 09:01 AM]
Disney Begins Production on New "Muppet Babies" Series, Slated to Debut in Early 2018
Geared towards kids 4-7, each episode will feature two 11-minute stories that follow the Muppet Babies on various adventures as they let their imaginations take them to the farthest corners of the universe.

[10/26/16 - 09:00 AM]
Esquire Network Teams Up with Nick Offerman and the Movember Foundation to Throw a "'Stache Bash" to Raise Awareness of Men's Health
Take a look at Nick chatting about moustaches and tune in to the marathon to see the best of the beards and flavor savers.

[10/26/16 - 08:56 AM]
Travel Channel Says Week of December 25 Is the Perfect Time for a "Chill-cation"
Travel Channel's favorite experts and explorers - Josh Gates, Jack Maxwell, Anthony Melchiorri, Don Wildman, Andrew Zimmern and Zak Bagans - will lead ultimate chilly escapes with ice-themed episodes of the network's most popular series.

[10/26/16 - 08:32 AM]
ABC Brings You "Home for the Holidays" with Series and Specials from Thanksgiving Through the New Year
Highlights include new seasons of "The Great Christmas Light Fight" and the re-monikered "The Great American Baking Show."